Finally a test came back negative

We got the results back from Seth's ultasound and his liver looks perfectly normal!!!!!! I was really prepared for the worst due to the bad luck we have have in the past, but things are finally starting to settle down some with his liver being good and his weight being ABOVE AVERAGE! And as of tomorrow Seth will have a little cousin to look out for so he will need his energy! And a special hello to sweet Skylar, we love you and miss you very much, Seth stills talks about you, we hope to see you soon! Thanks for checking in.

Seth Soria is breathing at 95%

Seth Soria is breathing at 95%!
We went to the doctor on friday and his lung capacity at that time was 95%. Considering he already has some damage in his left lung I wasn't sure what his numbers would be but when I heard that I almost fell out of my chair. Also his BMI is holding strong at around 50% and he has grown an inch in 6 weeks. My baby is becoming a boy! We also did the ultra sound and at initial glance everything looked okay but we won't get the full results until around Wednesday. So thank you for all of your prayers I really beleive they are making a difference.

LIFT OUR VOICES!!!

So I am on my soap box today and I am hoping you all will join me. I have recently learned through a cff web cast that ANY exposure to smoke will lower their lung capacity 10%. I started thinking of how few resturants in town offer no-smoking dining and I was disgusted to see how many places my son was not going to be allowed to go to including the local bowling alley! So I have written an e-mail to my congressman telling him I want indoor smoking outlawed in North Carolina! If New York can ban it so can we! Our local congressman's name is G.K. Butterfeild and his e-mail is nc01ima.pub@mail.house.gov. So please please please join me in my fight for fresh air!

We're on a roll!

Seth had another check up last week and he has gained even more weight!!! We are now up to the 60% marker. Thank God for the blessings!! The Dr. did some blood work to to check his liver numbers and everything looks normal, however she still says it feels enlarged so on the 2nd of May we are having an ultrasound done.
On the fundraising front we raised over $900.00 at the Applebee's Flap Jack Fundraiser! So thanks to everyone who helped and supported our cause and especially to the volunteers!
P.S. I have heard of a movie coming out called "Jack and Jill against the World" and one of the main characters plays a girl living with CF. It might be interesting to check out!

Hello to all our new friends!!!

I am so excited about all the new interest we have gotten thanks to Nate!!! Just a little update on Seth's health; he has gained 3 1/2 lbs. which gets us out of the feeding tube worries. We have been feeding him anything and everything including three carnation instant breakfast cans a day and "butter sandwiches", but it worked!!! The bad news is his doctor is now worried he may be having some problems with his liver so we are going next month for that test. But, as you see in his most recent horse pictures he is happy and growing well. Thank you all for your support, interest, and your prayers.

"Chow-Boy"

It's official. Seth is the first and only "Chow-Boy" in our entire family. :) He had a really great time riding his first horse. Too bad they don't make seat belts for these things to help ease mommy's mind!! LOL




Riding like a pro!

Hey there little partner!

"Chow-boy" Seth

What a big boy!! He even got in a little trotting action!

12/2/2007 For the Elizabeth City parade we included a float for CF. Our float was just to increase awareness for the disease. We decorated a trailor, made flyers and handed out candy. It was a great day......Seth was a very good boy sitting in the float and waving at all of the spectators. Check out our pictures and see what a great float we made

Disney World

9/11/2007 We just returned from DisneyWorld!!! What a fabulous trip that was. Seth was a perfect angel!! It was a great trip from beginning to end without any complaints. We went to all of the parks at least once and spent the entire day, every day, at the park. Check out our photos so you can see for yourself just how much fun we had.

1/4/2008 Seth went to clinic today. He got basically good results today. He has been doing so good lately. He was recently put on an appetite increaser but haven't really gained any weight. The doctor is now considering a feeding tube within the next six months if he doesnt't gain considerable amount of weight. So please keep him in your prayers.