Ready for the Holidays!!!

So far so good this season, other than some aggervating sinus infections Seth has been doing really well and is steady growing and learning. Having him in "big boy school" has just been blowing my mind. He is learning things so quickly, like counting backwards!! I can barely do that! He just impresses me more and more every day. And he is very ready for Christmas, everytime a commercial comes on he's yelling OOO I WANT THAT! He has quite a list, Santa will be very busy and very broke:-)

Another Sinus Infection

We went back to the doctor yesterday for a little check up and to get SHOTS!!!!! First things first his PFT's were 108% so we were doing our high numbers dance. But somebody tell me how him growing an inch and losing a pound takes his BMI from 54% to 32%??? He was coming in for a check up from his last two week antibiotic treatment for a sinus infection and it turns out he's gonna be on another antibiotic because we just can't seem to clear his little head up.
So here comes the shot, he knows it's coming because we've been talking about it all morning, and he's gotten to where he really hates shots and acts a complete fool to try an avoid it. So the nurse comes in and he lets his body go limp and starts sweating and crying immediately. He's waiving his hands and saying "wait wait can't we talk abou this". I try to comfort him and talk his down but he's being so rediculous that me mom and two nurses hold him down. He's setting on the edge of the bed with mom holding his legs I'm setting to one side of him holding his arm and keeping his head turned away from the needle and the nurses are on the other side holding his skinny little arm still (to be in the 32% BMI percentile he's REALLY strong). So we're telling him he's gonna get an ice cream and what will make this better, how can I make you happy and just as the nurse sticks the needle in he yells A TOY! We giggle and start putting on the band aides and all and he shrugs his shoulders and says, "that didn't even hurt". This child is just too much for me!

Happy Halloween!

We hope ya'll had a wonderful Halloween I know we did! Since we have such a large family and lots of little ones we thought we would try something new this year so I had Seth and Dylan help me decorate their dads trailer and we went hay ride style! We had such a blast and were able to hit up so many houses without the kids getting overly tired (last year dad and Kevin had to take turns carrying Seth cause he tired out so early!). We had 16 people total plus one very cute dog! And my baby gets so excited and wants to be the first of the kids to get to each door that on three different occassions he ate the dirt! Two ditches and one time I think his own foot!! However neither one phased him, he just jumped up and kept going! Gotta love little boys ;)

Monday.....

Seth went back to school today in hopes most everyone was feeling better. His sinus infection seems to be doing a little better, he hasn't needed anything to help him sleep through the night in several days now. Maybe his body is getting used to the change in weather. I found out today that a fellow Cfer here in town, Reilly, is in the hospital getting iv antibiotics for the first time and hopes to come home today or tomorrow. Please keep them in your prayers!

Hiding from the flu

Seth started coughing a bit last Tuesday and had a couple sleepless nights because of it so we decided to keep him out of school for extra treatments and some TLC. After it continued (and the diarhea started)on we though it best not to assume it was his sinuses and take him on to the doctor. Well the Doctor just agreed that he thought it was just a sinus infection and started us on two weeks worth of antibiotic. I had planned to go ahead and get his flu shot at this visit because I had been warned before not to get it too soon because the real flu season doesn't start until December or so, but because of this infection they didn't think it was safe to give him the shot. Feeling better I took him back to school the next day only to find out that 95 students had been out sick with the flu the day before, which is atleast 1/3 of the school. Having the flu going around like that is scarey enough but without the vaccination it was just more than I could take so we turned around and went back home. I feel like with all he goes through the flu is the last thing he needs (especially since we just got his BMI up to 54%, his record high) and if I could find someone to build a giant bubble to put him in I think I would do it. Anyway the plan as for now is to let him go back on Monday in hopes that most of the children will be feeling better. Meanwhile I'm getting lots of Seth and Mommy time ;)

PS Don't you hate when parents send their kids back to school when they are still sick!!! We'll never get rid of the flu that way!

Keeping Me Busy

I know you other parents with young CFers will know what I mean when I say there are some days when my baby is so happy and full of life and energy that you almost forget that they have lung disease. We woke up Saturday and he was ready to go fulll speed as soon as his little feet hit the floor! We went straight to get our pumpkin and brought it home to carve (which I'll admit Kevin may have enjoyed more then anyone!), ate a quick lunch then on to the Chowan County Fair! This child road rides that his daddy couldn't ride!!! He amazed me with his bravery and iron stomach. He road the mechanical bull and every ride he was tall enough to get on including the scrambler and the Battering Ram (I know I'm spelling that wrong). I enjoyed that fair more then I ever have in my life, watching his little face light up and putting his arms in the air like he was too cool to hang on! Of course the next day (and the one following if I'm being honest) my back feels like I spent the day in a Chinese tourture chamber instead of the fair ground. As soon as I figure out how to download these pictures off my phone I will post them, he was really too cute!

We made gread Strides Saturday!

I just wanted to thank all of our supporters for another successful year! As of Saturday we raised over $22,000!!! From what I understand we will also be taking donations through the end of October to add on to this number!! We had a large turn out and are proud to say that we had two new teams Team Madison who's daughter was recently diagnosed and a local church team. Also a big thanks you to MONTERO'S who is always so generous and provided lunch for everyone at a last minute request! As soon as I get the pictures I will post them. Also Kevin and I took the time to explain the walk a little more this year then we have in the past. (Last year I told him it was national Seth day!!!) He is now saying cystic fibrosis (or something fairly close) and knew that everyone was there to give money to his doctors to make his lungs better. I just can't explain how proud I am of him. And I will mention that he was very proud of himslef too- for finishing the walk first, even though his uncle Robbie carried him the whole time!!!

Home sweet Home!

So he made it home safe and sound with lots of great stories. Every sentence has started with "When I was in Disney World....". He has lost his second tooth while he as there, it fell right out on its own. He just suddenly realized it was gone and they went on a wide hunt to find it, turns out it landed in his nebulizer mask!!! While he ws happy to be ruinited with his parents he still really wants to "move" to his hotel room, but he says we can come too :=). Our next big event is our walk Saturday, everything seems to be coming together well and I'm really looking forward to coming together with our CF communitee and feeling the love and support from others who care and understand. Enjoy the pics!!!