Feb 16, 2010

A Full Nights Sleep

I am so grateful to have gotten not only one full nights sleep (the first in over a month) but several full nights in a row. We are finally starting to get a hang of this thing. Seth is back in his own room and he too is sleeping much better without the sound of the machine going off throughout the night. A couple little tips for those of you who may have this in your future: even if 1000ml is exactly 4 cans go ahead and put a half can more because some gets caught in the bag and in the tube and if the pump thinks its out it will start beeping and you have to get up and refill the bag and reprime the line which is a major pain at 2am! Also they had originally given us 500ml bags even though he was getting 1000ml a night and we had to set the alarm to get ourselves up before the machine went off and woke Seth, it turns out that there are bigger bags but I guess you have to ask for them?? Atleast that was how it was for us, now we fill the 1200 all the way up even though he only needs the 1000 and it works perfectly! Also, and this is a big one that I felt like the surgen should have told us but didn't, start your child on a stool softener right away. Having to strain right after abdominal surgery is very painful and Cfer's have enough trouble in the bathroom as it is and need no more!!

1 comment:

Anonymous said...

Thank God! Here's to many more full nights and Seth gaining some weight!

Cheers
Ta-Te