Cystic Fibrosis Foundation - Home

Cystic Fibrosis Foundation - Home

Cystic Fibrosis Foundation - Home

Cystic Fibrosis Foundation - Home

Golden Corral Fundraiser

Our Golden Corral Fundraiser is officailly underway. Here is a picture of Seth by the tree. I like for him to come and be apart of it so he can understand the hard work and importance of it. I also take the chance to talk to him about the fact that people give money to us so we can give it to the doctor to make his lungs better.

On another note Seth has been out of school since I got the phone call Tuesday afternoon that his head was hurting and he was laying it on the table not wanting to participate after P.E. I am hoping he will be able to go for atleast a little while tomorrow so he doesn't fall behind.

Tis the season

I took the boys to see Santa at wal-mart and then there he was again at the mall (how do explain that?)

Anyway Seth had an appointment with the ENT on Friday, the Dr was actually able to see puss up his nose from the infection. He also said something that I has not thought about before but probably should have, that the bacteria that grows in the mucus in his lungs is probably growing in the mucus in his sinus'. So we started an anitbiotic nasal wash and another antibiotic nasal spray along with a oral one that he is going  to call in for me today because he is not  getting any better. It is very fustrating as parents for Kevin and I to watch him suffer, working so hard to cough up mucus that just won't clear and especially at night when he is so tired he does these really weak coughs because he is just so worn out from doing it all day and all night. The other night he coughed so hard he gagged on the thick mucus and threw up twice. And the past week it has been so bad I'm having to give him night time meds just to get him to sleep, the down side to that is he is so sluggish in the morning and keeps laying his head on his desk at school. We leave for our ski trip in two weeks and I would really hate it if he was sick the whole time, plus I'm worried about the pressure from the elevation change.  Does anyone have any advise on how to treat a severe sinus infection??

A New and Easy Fundraiser

Our local Golden Corral is allowing us to put up a Christmas tree and sell CF ginger bread ornaments for donation. I hope to have the tree up by this weekend so please spread the word so we can start our 2010 fundraising a little early this year!
Also we are taking Seth in to see ENT on Friday afternoon to see if we can do anything more for this sinus infection. He's had it for about three months now and he is so tough he rarely complains about anything but has been saying recently that his head hurts and I'm positive it's from the sinus pressure. So keep yor fingers crossed that Dr. Han will have some magic up his sleeve!!

CVS/pharmacy and Warner Home Video team up to raise critical funds for cystic fibrosis

CVS/pharmacy and Warner Home Video team up to raise critical funds for cystic fibrosis
This is a great new fundraiser being done this year!! Please participate and spreed the word to others so they can too!!!!

Ready for the Holidays!!!

So far so good this season, other than some aggervating sinus infections Seth has been doing really well and is steady growing and learning. Having him in "big boy school" has just been blowing my mind. He is learning things so quickly, like counting backwards!! I can barely do that! He just impresses me more and more every day. And he is very ready for Christmas, everytime a commercial comes on he's yelling OOO I WANT THAT! He has quite a list, Santa will be very busy and very broke:-)

Another Sinus Infection

We went back to the doctor yesterday for a little check up and to get SHOTS!!!!! First things first his PFT's were 108% so we were doing our high numbers dance. But somebody tell me how him growing an inch and losing a pound takes his BMI from 54% to 32%??? He was coming in for a check up from his last two week antibiotic treatment for a sinus infection and it turns out he's gonna be on another antibiotic because we just can't seem to clear his little head up.
So here comes the shot, he knows it's coming because we've been talking about it all morning, and he's gotten to where he really hates shots and acts a complete fool to try an avoid it. So the nurse comes in and he lets his body go limp and starts sweating and crying immediately. He's waiving his hands and saying "wait wait can't we talk abou this". I try to comfort him and talk his down but he's being so rediculous that me mom and two nurses hold him down. He's setting on the edge of the bed with mom holding his legs I'm setting to one side of him holding his arm and keeping his head turned away from the needle and the nurses are on the other side holding his skinny little arm still (to be in the 32% BMI percentile he's REALLY strong). So we're telling him he's gonna get an ice cream and what will make this better, how can I make you happy and just as the nurse sticks the needle in he yells A TOY! We giggle and start putting on the band aides and all and he shrugs his shoulders and says, "that didn't even hurt". This child is just too much for me!