CF "Cure Found"

All about Seth

Nov 23, 2009

Posted by Seth Soria at 1:54 PM

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Kevin Becky Jordan

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About Me

Seth Soria: Elizabeth City, North Carolina, United States; I was diagnosed with Cystic Fibrosis in November 2006. CF is a genetic disease that makes my lungs fill up with mucus. I go to the doctor all of the time ever since I was born. The doctor's didn't know what was wrong with me until I went to CHKD in Norfolk, VA. That is where I was put in the hospital for the first time. I wasn't scared because all of my family stayed with me. While I was there I was put on a lot of medicine and had to get stuck with lots of needles. They hurt me a lot and made me cry. I am now on more then ten different medicines every day and take physical therapy (for my lungs) at least three times a day for thirty-five minutes. Just the Vest that I wear for my therapy cost about $17,000.00 and one of the medicines that I take cost $1,000.00 per month. It takes a lot of my Moms time to make sure I get all of the things I need. I take special pills every time I eat because my body doesn't absorb fat and I cannot gain weight without them because my pancrease failed when I was just 2. Right now the average life expectency is 37 years old. I would really like to live longer than that.

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They had so much fun!

Could he be any more perfect?!?

He's got the grove :)

Mickey was very excited to him!!!

Boys are so gross, yuck.

Seth driving.. SCAREY!

Seth kept Papoo from being too scared!!!

Me and dad getting ready for "prom"

"I wanna be a rockstar!!!"

Lost my first tooth

First day of Kindergarden

surf's up dude

"Look daddy I can do it too!"

Who's Visiting Us

2007 Christmas Parade

Our Float

Cystic Fibrosis

CF "CURE FOUND"

CARNATIONS FOR DONATIONS

Me, Papoo, Mommy, and Uncle Ryan! Our sell at church was a success!

Getting dressed for Church

65 Roses

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Great Strides Walk for Cystic Fibrosis

We are having our first ever walk for Cystic Fibrosis in this area in September 2008 in Elizabeth City we will be trying to raise $40,000.00 to help find a cure for this life shorting disease. We can make a difference with your donation. It is 100% deductable and $0.90 of every $1.00 you give goes directly to research.
Please help in this emotional fight to save the ones we love so much!!!

Me getting my Treatments!

My Daily Routine

LINKS

http://cfhusband.blogspot.com
http://cff.org
http://greatstrides.cff.org

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