Sep 25, 2010

WALK DAY!!

Today is our walk day, it starts at 9 and we walk at 10. We are super excited!! I upload pics and sponsors of the walk as soon as possible. We also have our sleep study this evening to measure Seth's oxygen level and things of that nature while he's sleeping. Wish us luck!

Sep 13, 2010

Good weekend ;-)

The Dr. called in Bactrum, an antibiotic that he has been on several times before and so far things are ok, definently not worse so that's a good sign. However I think the only thing keeping him from being up at night is a cough med with sleep aid, but hey we'll take what we can get!
We had a nice Saturday here is is at his uncles house for a cook out Sat night. This is his dog Kalie who Seth absolutely loves, shes such a good girl. So he spent most the night playing and chasing the pup which is always cute to see! 

But before the cook out we had to run to Wal-Mart and I got suckered into buying a Halloween costume months ahead of time. And not only did he have me buy his custome (batman of course) but he had me buy batgirl for his cousin so they could "team-up"!

They were so funny running around saving Gothem City!

Sep 10, 2010

Above average :-)

Sethy making the best of the situation!



Seth is being recognized at school! Although he is not the most advanced student in his class he works very hard and impressing me and his teachers. Congrats my beautiful boy!!!

Sep 9, 2010

1 a.m.

Do remember when being up at 1am meant you were having an awsome night!?! I know I do, but those days are long gone! At 1am this morning I was up with a sick child coughing every breathe and just completely unable to sleep due to what has quickly become a pretty severe sinus infection. I heard him getting a little stuffy a couple days ago and I knew that this was coming since the weather is changing a bit and he is back in school with so many other kids and their germs but man, it seems to get so bad so quickly. He's very calm and gentle and I'm tired and feeling helpless (I mean I gave him albuteral, hyp saline, pulmozyme, Toby, nasanex, antibiotic nasal spray, mucinex, vicks vapor rub...is there anything I left out?) remembering how much we struggled with his sinuses last year and fearing the sinus surgery talk again. But we got up this morning and went to school, it is picture day go figure, and he seems so much better just by being upright and moving around but he's bound to crash do to the lack of sleep.
And to make things even better I called Dr. Han's office at CHKD at 8am and left a message on the appointment line saying I needed to get in before the weekend if possible for a sick visit, it is now after 11 and I have heard nothing. That's fustrating. When I called his Cf Dr. to see if they had some pull and could help get us into the ENT she suggested that I see his primary first. I mean no harm because I really love his primary who is here locally but my son needs to see a specialist. And if I take him to his primary that's exactly what they are going to tell me so I am wasting time and money and taking him out of school all for what?!
Sorry to rant but I am an over protective sleep deprived mother who does not like to be put off! I'm sure alot of you out there know what I'm feeling.

Sep 8, 2010

FUNdraising time!!!

I also wanted to let everyone know about a fundraiser that is being put on by the Chrome Pony Mustang Club here in EC! It will be September 18th from 9-3 and they are expecting a large turn out. Several awards will be handed out to the car owners who participate but one very special person will recieve the benefit aware to be decided by the CFer's that attend! I know Seth is going to be so excited to hear that he gets to choose his favorite and hopefully there will be other CFer's who will also get the chance to participate! Please help spreed the word!

Pepsi is a great sponsor and resource!

Long on to this website and vote for CF to recieve the $250,000.00 that Pepsi is giving away, we are currently in third place. We could win if we all remember to do this once or twice a day! What great easy money not to mention the exposure CF would get if we won!!!!

Sep 3, 2010

We made it through Earl!

So all the big hype over hurricane Earl and it ended up being just a yucky night and day, some winds and mild yet steady rain. Nothing too major. But you just never know around here so we prepared a little just incase with some candles and flashlights and of course securing everything outside. Seth went around at about 4pm yesterday unplugging everything that "electricical" and telling me his teacher wants me to listen to the radio to see if school will be cancelled. We did get a two hour delay out of it so we all slept in a little so that was nice, and the sound of the rain is soothing to me when I'm sleeping so all in all it worked out nice for us! Hope you all were equally as lucky!