Mar 2, 2009

Our roller coaster ride...

Just when we thought we had dodged a huge bullet by getting his lung to re-inflate we get a call that he has grown something new in his sputum. It's a bacteria we have all heard of and learned to be very scared of, the commom name is MRSA. From what I had heard from others and in the news about this bacteria this was going to really hurt Seth's lungs and speed up his disease. However after talking with the Dr. my fears have been slightly controlled by the fact that there is no reason to think at this point that the MRSA is actively doing any harm and since his PFT was at 107% they are not even going to treat it at this time. Also his sinusitous seems to be giving him trouble because he is coughing constantly waking up at night but his lungs sound clear, so we will see Friday what the ENT says. If he says it is not his sinuses we will look again at the possibility of treating to MRSA. Meanwhile we are doing the nasal cleansing. If you have never done this and are curious what it feels like stick your head in a swimming pool full of chlorine water and inhale through your nose. Seth wanted me to try it first and so I did, it's extremely close to torture. But I have to say it does work, I am squirting the water through one of his nostrils and the water with globs of green mucus is pouring out of the other nostril and his mouth.
The poor kid has not been healthy since the begining of November, it has been one thing after another. I am just praying for some helpful results on Friday, we really need something to bring up our morale. Please keep Seth in your prayers.

1 comment:

Anonymous said...

I will keep Seth in my prayers. I can imagine how much that would freak you out.

Reilly goes to see Dr. Han this Friday, too. What time is Seth's appointment? We go at 1 or 1:30.