Cystic Fibrosis Foundation - Home

Cystic Fibrosis Foundation - Home

Cystic Fibrosis Foundation - Home

Cystic Fibrosis Foundation - Home

Golden Corral Fundraiser

Our Golden Corral Fundraiser is officailly underway. Here is a picture of Seth by the tree. I like for him to come and be apart of it so he can understand the hard work and importance of it. I also take the chance to talk to him about the fact that people give money to us so we can give it to the doctor to make his lungs better.

On another note Seth has been out of school since I got the phone call Tuesday afternoon that his head was hurting and he was laying it on the table not wanting to participate after P.E. I am hoping he will be able to go for atleast a little while tomorrow so he doesn't fall behind.

Tis the season

I took the boys to see Santa at wal-mart and then there he was again at the mall (how do explain that?)

Anyway Seth had an appointment with the ENT on Friday, the Dr was actually able to see puss up his nose from the infection. He also said something that I has not thought about before but probably should have, that the bacteria that grows in the mucus in his lungs is probably growing in the mucus in his sinus'. So we started an anitbiotic nasal wash and another antibiotic nasal spray along with a oral one that he is going  to call in for me today because he is not  getting any better. It is very fustrating as parents for Kevin and I to watch him suffer, working so hard to cough up mucus that just won't clear and especially at night when he is so tired he does these really weak coughs because he is just so worn out from doing it all day and all night. The other night he coughed so hard he gagged on the thick mucus and threw up twice. And the past week it has been so bad I'm having to give him night time meds just to get him to sleep, the down side to that is he is so sluggish in the morning and keeps laying his head on his desk at school. We leave for our ski trip in two weeks and I would really hate it if he was sick the whole time, plus I'm worried about the pressure from the elevation change.  Does anyone have any advise on how to treat a severe sinus infection??

A New and Easy Fundraiser

Our local Golden Corral is allowing us to put up a Christmas tree and sell CF ginger bread ornaments for donation. I hope to have the tree up by this weekend so please spread the word so we can start our 2010 fundraising a little early this year!
Also we are taking Seth in to see ENT on Friday afternoon to see if we can do anything more for this sinus infection. He's had it for about three months now and he is so tough he rarely complains about anything but has been saying recently that his head hurts and I'm positive it's from the sinus pressure. So keep yor fingers crossed that Dr. Han will have some magic up his sleeve!!