Mar 10, 2009

The waiting game

The appointment with Dr. Han went as expected, anti-biotics and steroids for the next three weeks. The polyps in his nose have grown so large you can see them just by looking up there with a flash light. The steroids should help bring them down some and hopefully when that happens and the infection is gone we will get a new CT scan to see what's really going on. At that time we will know weather or not we have sinus surgery in our future. Seth, as always, is hanging tough and is back to school full time. And Thursday we leave to go skiing to West Virginia, it will be Seth's first time! The place we're going has a large indoor water park so he is so excited! He is really deserving of a great break, I'll let you know how things go!

Mar 2, 2009

Our roller coaster ride...

Just when we thought we had dodged a huge bullet by getting his lung to re-inflate we get a call that he has grown something new in his sputum. It's a bacteria we have all heard of and learned to be very scared of, the commom name is MRSA. From what I had heard from others and in the news about this bacteria this was going to really hurt Seth's lungs and speed up his disease. However after talking with the Dr. my fears have been slightly controlled by the fact that there is no reason to think at this point that the MRSA is actively doing any harm and since his PFT was at 107% they are not even going to treat it at this time. Also his sinusitous seems to be giving him trouble because he is coughing constantly waking up at night but his lungs sound clear, so we will see Friday what the ENT says. If he says it is not his sinuses we will look again at the possibility of treating to MRSA. Meanwhile we are doing the nasal cleansing. If you have never done this and are curious what it feels like stick your head in a swimming pool full of chlorine water and inhale through your nose. Seth wanted me to try it first and so I did, it's extremely close to torture. But I have to say it does work, I am squirting the water through one of his nostrils and the water with globs of green mucus is pouring out of the other nostril and his mouth.
The poor kid has not been healthy since the begining of November, it has been one thing after another. I am just praying for some helpful results on Friday, we really need something to bring up our morale. Please keep Seth in your prayers.